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August 28 what is that smell?
August 25 onward we roll Hey buuuuuudddddies. How ya dooo in? (Pauley Shore used to say that) So how are all of you? Really? I am peachy. Literally. I received a batch of peaches from my OD family, and oh my goodness, Heavenly. As a kid growing up, we had a peach tree, and also a couple of pear trees. Fresh peaches have no rival. With my transplant, I have to be careful HOW I eat the foods I eat, so my fresh peaches had to be peeled, and cleaned properly, but you cannot wash away perfection. Last night, I got some of my peaches out, warmed them in the microwave (Bacteria) and ate them in a bowl with a packet of splenda on them. Do you suppose that is what God tastes when he kisses us? Anyway, I toothlessly savored every morsel of peach, closed my eyes, and sipped the juice. I am currently dreaming of reuniting with some more of the aforementioned peaches this evening.
Life really is good isn't it? I feel really well. I am excited to be alive. Tomorrow, I go in for my second biopsy, but so far, all is well. My kidneys are functioning quite well, and I appear to have lost 8-10 pounds of fluid in the last couple of days. Each day brings improvement and new strength. There are minor setbacks, but compared to pre-transplant, not really worth mentioning. My body is adjusting to the "new guy" in my chest, supplying more blood than it has seen in quite some time. I have a few scabs left over from the chest tubes, and the LVAD driveline. but with the exception of the recent pre-transplant weight gain, I am almost ready to go shirtless. LOOK OUT LADIES! Hey it is my fantasy, keep laughing, and I will go buy a pair of speedo's to go with the bare chest. Then you will be sorry. Ahhhhh who am I kidding, speedo's give me a wedgie, and I prefer those long baggy swimming trunks. I think seeing myself in speedo's would probably have the same effect as it would on most of you. YIKES! Not only that, but some nurse with a wicked sense of humor shaved me from head to toe, so, I would look like a huge baby with a hormonal condition. That sounds like a new diet plan. Think of that right before a meal. Sorry dear, I'm just not that hungry all of a sudden. Hey, how 'bout them 'lympics? Thank our Holy almighty God they are over. There were moments of interest, to be sure. But c'mon, do we really need Synchronized diving? I am very proud of Michael Phelps accomplishments, but If the guy leaves a suspicious bubble in the pool, it makes the news for days. To me the real stories, were the tiny little countries who only sent a few athletes, but made the most of their chances. They will never get high dollar endorsements, but the had the HONOR of representing the country they love and occasionally winning a bronze medal. Those are the stories I watch for. What a surprise Bob Costas, the U.S. men's basketball team won the Gold? Really? Who would have ever guessed it in a million years? Please, give the olympics back to the amateurs. Let them be the next Bruce Jenner, and make the wheaties box. That is my opinion, and you all are entitled to it. I hope I don't sound bitter, I am a sports nut. (Yes I was proud to be an american when Kerri Walsh, and Misty May won the women's beach volleyball gold) Okay, the fact that they play in bikinis might have influenced my opinion slightly, but I was just as proud of Todd Rogers and Dahlemann won the men's gold. Guys, It has been a fun visit, but I need to hang it up. I need a nap, and I shall have one. God bless you all, and I love you. Will have more info for you later in the week, and we will visit more then. August 20 Shout to the lord!Hey good friends. It has never been my habit to read my old blogs, and relive the past. That is not a tradition I am going to begin now. It has, however, occurred to me that we have been through a rough patch together, and I might not have been as upbeat as you deserve to read. So I dedicate this writing to the sharing of great news, a great Big God, and you. My best friends. I cannot say anything more appropriate to start this than "PRAISE THE LORD!" I have had this new heart for almost 20 days now. It seems to work pretty well. My EF, at last check was 58%, or pretty much normal for a human being! God is so good! I wish I had real teeth, so I could smile for all it's worth. My pain is mostly gone already, again, Praise God. I am doing very well with my medicines and the immunosupressants that will be with me for the rest of my life. I have a cherubic, round, red face, from the steroid I am taking, which causes me to do a "double-take" each time I see that stranger in the mirror. I laugh, because, I live! I know there are no guarantees from here on out, but I didn't expect to get this far, so this is all gravy as far as I am concerned. More great news. I got my first biopsy results back today... Drumroll please!... I scored a "0"! Zero signs of organ rejection! Oh praise you God!. Folks if you feel halfway decent when your feet hit the floor for the day, I need you to be praising almighty God. I cannot tell you, how alive I feel. Every sensation is alive and firing. (Yes even the gas tank seems full. My life is a thing of beauty. I am not writing all this so you can be happy for me, I want you to find hope in my words. Many of us suffering, are looking for that hope, and It would not serve God, if I just took my share and walked away. I have struggled since the transplant, trying to decide just how "happy" to be, and not hurt the hope of others. DUH! I waited a long time, and gained faith through your triumphs and tragedies, and every instance made my faith stronger. I dealt with life and death every bit as real as it gets, and became stronger. Please, use me to strengthen you. You are special too, and good or bad, The answers are waiting for you. If it is not the answer we are seeking, it is because we are not seeking his answer. Guys, remember, life can get better, even as it seems to get worse. My donor was being given his/her chances to accept the lord, or even to say what needed to be said, and whether or not that happened, is not for me to know. I wouldn't want to be a part of rushing that. I want to encourage you, as I close, to bow your head, find something, anything, to say to God, and say it. If your heart is hurting, start the healing process. If you have a loved one in need of God's love, pray for them. If you are thankful for something, then scream it out, and wake the neighbors up! God never left, he is still in out hearts, our courthouses, our schools, everywhere. Jesus died for us, the very least we can do is stand up for him! I truly love you all, and cannot wait to speak with you again. Until then, my prayers are with each one of you. God bless. August 17 week 3Hi friends and family. I thought I should keep you updated as often as I can because I have been receiving such an outpouring of love and support from all of you. So here goes. I have entered week 3 with my new heart. Yesterday was my birthday, I am now 38 years old. It is kind of surreal, because I have based my survival up until transplant, and not so much past that point. No one ever said transplant was easy, and I am not going to be the first. It is scary, beautiful, unsure, tentative, encouraging, emotional, and any number of other emotions one might want to add on. And, oh yeah, painful. If it were easy, though, we would probably be out there swapping organs willy nilly. The irony is that the pain is not what and where one would expect it. I had my chest split open (again), but it is my hands and feet that really hurt. I am swollen with surgical fluids in my abdomen and my legs, but so very happy to be alive. I mean that. One does not appreciate the "dance" with life, until we begin to feel it slip away. Almost any transplant patient will tell you, they were dying when they finally got "the call". I am not sure where I fall in all of this, because I had an LVAD (NO, I DO NOT MISS IT!!!) sustaining my life activities such as blood flow etc. But the act of dying can also be a thing of beauty. You really learn to notice the little things. You tend to do things based, more on what the impact in the future, and less on the here and now. It is a shame that it takes something like that to learn to live. Now, I am at the doorstep of a brand new life. I have goals, plans, priorities, desires, wants, and needs that I had totally put aside just to survive. I promised God everyday, that if he brings me through this, like there was ever a doubt that he would, I would serve him for life. And I will. I suppose I should have taken all of my spare time, and made a concrete plan on how this should go, but, then, It wouldn't be my plan, would it? Now the job is to be vigilant, and listen for that still, quiet, call to service. Whether it be speaking, writing, or sweeping a church floor, I am at God's service. That is so liberating to say, and to feel. I feel free at this moment, and so very content in God's love. Folks, please, let him draw close to you. Feel that hug from your past that you long for. Reach for that sense of security that can only come from within the father's arms. I have spent nearly two weeks in a tail-spin, wondering "what's next?" Well, I figured it out. NEXT is NEXT. I have my first heart biopsy tomorrow, to check for rejection. Blood tests to check medication levels, and all sorts of appointments with docs. The thing is, I am no longer "pre-transplant" Transplantation was one of the goals, and as for the goal, WE MADE IT! Now we take the next step. Join me, let's walk this part together also. I love you guys, I really do. August 11 chapter 3Hey kids. By now you have heard the news. If you haven't , you have been under a rock or really should check your voice, and email more often. WE GOT A HEART!! Praise God, Praise God, Praise God! I have been wanting to write sooner, and some of you have been getting a little restless, but in all its glory, Heart Transplant still hurts and requires a ton of recovery. I wanted to share it with you all as soon as I could have something to say...DUH! If I type PRAISE GOD! 500 times it won't come close to letting you in on my emotions. I am going to attempt to put some thoughts into legible order, that makes some sense. I want to say first, that, this is as much a celebration for all of you, as it is for me. You have sat and read my words and cried with me. You have emailed, called, sent cards, and, most importantly you have praised God with me when things were pretty tough. You also have prayed with and for me. Well, So, now we can quit praying, huh? Mission accomplished, pack it up, party's over, last one out, turn off the lights. We all know better than that, right? I have been praying since I awakened Monday morning. For all of you. For me. For people up on this floor, that I don't even know. I have learned to love prayer. I find it so comforting. So liberating, so close to God. Never once have I wondered, "where do we go from here?" It has been planned out since before I ever got sick. This is only the beginning. I am going to wrap it down for the evening. I am exhausted, and still very weak. They, rightfully so, push me pretty hard up here. I just wanted so say a couple of more things. I am going to survive this, get healthy, and make a goal to visit all of you. I am going to continue my prayers for each of you, and your families. I have so many great ambitions, right now, and I will accomplish them. But for the next few days and weeks, I am going to get better. Pray more, and, as always, I really love you all. The last thing I want to do, is leave you with this thought... I have a brand new heart. It is mind boggling. I have the heart of a person who no longer walks among us. I have the heart of a husband, father, son, brother, (Female is possible, not likely though.) I want you to get to know, and get to love, this heart also. And, pray for the family of the person who saved my live. |
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