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August 30 thursday's update. hello, all how are things today? I had a pretty bad anxiety attack last night, but my loving wife Mary talked me through it. It is pretty intense for anyone who has never been through it. It feels like you are having a heart attack. The only thing you can really do is pray and try to put your mind somewhere else. It is pretty scary though. On to better things. Today has been a much better day. I was able to get around the house alot more. I spent alot more time on my feet and was even able to help prepare our dinner. I am still losing weight, about 3 more lbs over yesterday. I need to drink more fluids and stay pretty steady on my food intake. My blood sugars have been going very well since they took me off the diabetic meds. I still have a long way to go before I can be normal, but with God's help we'll get there. Please continue to pray for mary and the girls. She has really been going through a tough time trying to keep everything together through all of this. I hope some things can return to near normal soon and we can get on with loving and living. The girls are doing well in school and have been riding their bicycles to and from school everyday and say they are enjoying it. Caitlyn gets most of her homework done at school and Jordan usually brings some home. Tomorrow is friday and I hope to take a small trip out of the house on saturday. I am not sure what to expect with what is going on with me but I think I should do okay. The medications are still hammering me pretty good but I seem to tolerate it a little more every day. The docs say it usually takes about two weeks for my body to adjust. I have about 1 and 1/2 weeks to go. I will continue to fight for all that God has set aside for me. I want to get better and scream his glory from the mountaintops. I am gonna go for now so God bless and I love you all. MARK August 29 home at last hello all today is going to be brief. I was discharged from St. Mary's hospital yesterday (tuesday) and am now at home in Des Moines. I am feeling very poorly as they are trying to double my dose of Coreg. It has a nasty effect on me and it is hard to take. However, my heart needs this medicine to maintain its shape until I can receive a new heart. I am told after about 2 weeks I should begin to feel better. I really hope so. I am still praying for all of you, and I will continue to fight for my health. God is not finished with me yet and I am not going to quit on him. He has brought me this far and he will get me through. God bless you all. Mark August 26 mayo inpatient 2 well howdy there gang, happy Sunday to you. the biblegateway verse of the day is romans 12:4-5. It is a beautiful scripture and should mean alot to all of us. I could describe it, but you will get more from reading it. Sunday is the lord's day and really wish i could get to church, but God reminded me that he is in my heart and I don't need a building to love him. It is also a very special day because Mary and the girls are making the trip up here to see me. I think i will even take a shower today. Unfortunately I cannot shave...Oh well, I guess I will just have to keep my legs covered. (that was a joke...get that look off your face) I dunno, maybe i can get a razor up here, they shave everything else in here, why not my face. Seriously they shaved areas that they didnt even work on. (only my lovely wife will know for sure i am telling the truth). I am in a pretty ornery mood today, and not feeling too poorly. I am beginning to adjust to the heavy medications they are "loading" onto my system. It makes me slightly lightheaded, but It should greatly reduce the chances to get a defibrillator shock. There is a chance that I might escape this joint early to mid week this week. I have a few appointments to wrap up for the transplant work-up. Among them is the psychological evaluation (NOT A WORD FROM ANY OF YOU!!!). It has no bearing on my eligibility to receive a transplant, I just think they want to feel good about themselves because they aren't the only nutz out there
August 25 mayo inpatient. well hello gang how are you today? I seem to have stabilized for the time being, and the docs are tweaking my meds. The meds make me feel pretty rough, but so does getting shocked. I guess i will tolerate the meds. I am excited for tomorrow, Mary and the girls are coming to see me. The Gordons are going to bring them up so they can get my truck and drive it home. I know any one of you would have offered and many of you have offered, so this is not a popularity contest. Every one who reads this has helped in the past and will be of great help in the future. So please dont be offended if I dont ask. I have to try to do as much for myself and for my family as I can and some see that as pride but to me, it is simply living. I love all of you and the proof of that is the fact that you are reading this blog. You have been invited to read this public account of my life because I think you are special. I have become closer with God than I ever have because all of you are praying for my health and soul. I am thankful for all of you and i hope to be home and somewhat normal very soon. I have been very blessed to be reunited with the Renner family from back home. It means alot to me to communicate with people who know my whole family and history (good and bad). I hope to get well enough to travel back there soon and see everyone. Please keep praying for me and my family, this is gonna be a rough time for us, but the prayer and the love of god will get us through. love to you all and I'll try to be more of a joker next time. August 24 outpaiient updated hey all, i am updating my status from outpationt to inpatient. Most of you know this by now, but i have been re-admitted into the mayo clinic. I was undergoing the treadmill stress test and i received a total of 7 shocks from my defibrillator. oooooooooooohhhhhhhh that stings. I have been admitted so electrophysiology can decide how best to not make my heart that mad. The term is ventricular tachacardia. Basically it is an electrical tornado on the scar tissue surface of my heart. These high speed impulsed eventually find live tissue and dive in making the living area of my heart very angry. The next step is my heart goes on a run and caused big problems. without corrective measures (usually a shock by pacemaker or paddles) there is only one outcome... but I have the pacemaker so i have built in assistance...hence the shocks. I guess the next course of action is to increase the dosage of my anti-ahrrythmia medication. If that is not effective, the next step is called ablation. this is an extensive and lengthy procedure where the ep guys go in through a catheter and map out the electrical signals (the bad ones. they have to make my heart mad to do this) on the surface of my heart. When the problem areas are located, the surface of the heart is then "ablated" or burned with a laser. this creates a "fire break" on the surface of my heart. August 21 mayo outpatient update. Hello all, I have escaped the clutches of the mayo clinic inpatient service, only to return as an outpatient. I am up here for some additional testing which will help the transplant team decide my candidacy for a new heart. After one day of testing, I dont have the best of news. When I had my original heart attack in 2005, I had the misfortune to be awake and fully conscious when a lifesaving shock was administered (nurse give me the paddles...STAT!) WOW than is gonna leave a mark! Anyhow back to the story...when they shocked me I bit down so hard that i basically destroyed the roots of almost all of my teeth! What this means today is those dead teeth have deteriorated to the point that they are going to have to come out,as they pose a potential risk for infection, which I will have no immunity to fight. I will be on heavy doses of immunosupressants to reduce the risk of rejecting the new heart. I guess Mary had better stock up on the sugar-free jell-o. hahahaha.. the good news is that I will have the best smile on all of the heart floor. I wonder if i could get a set of teeth with a bunch missing so when everyone throws those inevitable "WV hillbilly" jokes my way i can give them that million dollar smile. Just kidding, I am proud of my home state and her natural beauty. I am still praying for a miracle, but God's will is my priority. I hope he is going to use my life as a living testimony to his greatness. If not, I get to go home. This is the classic "win win situation" you really can't lose. I will continue to update the blog and keep you all posted on progress and events in the future. In the meantime, I am praying for all of you and I know you are praying for Mary and our daughters. God bless you all and good day. MARK August 19 mayo weekend update hello everyone. Greetings from Des Moines. I made it home thursday evening and verbally coached Mary on how to hook up the camper properly. She did a good job and off to the campgrounds we went. It was a weekend full of some discomfort and stiffness as my surgical site is still fresh. There are no stitches to hold things together, only steri-strips, which is a strong medical tape. This meant I have to be extra careful so that I don't open any incision sites. I was very careful this weekend so I did not make matters worse by moving too fast. The nice thing about the weekend is that I was with the people who I love the most and have been the closest to me throughout this whole heart saga. ( some were actually closer than they thought) Without them, life would really be empty for my family. Special thanks to the Gordon's, and the Peek's for all the help offered and provided thoughout this whole journey. Anyhoo, the weekend went well and I feel that I have taken large steps toward recovery and getting on with living well. I have a busy week ahead of me as I have a blood test here in Des Moines monday and back to Mayo (outpatient) for testing on tuesday and wednesday. I then return to Des Moines for some appointments on Thursday. If you have been praying for me, please continue to do so, especially for Mary and the girls. This is harder on them than it is on me. Another prayer request: The Transplant board meets Monday to decide my candidacy for transplant. I am hoping to get onto the transplant list so that I can watch my girls grow up and become women. Last but not least, I was not the best Christian I could be this weekend so I aploogize to all who witnessed my actions. I have prayed for forgiveness and vow to work harder and do better for my faith and my family. God bless you all and look for my next update. August 15 mayo day 6August 14 mayo day 5 well, all here we are wrapping up day 5 @ the mayo clinic. I got the test results back from yesterday and all was bad. Which is good. Remember bad means i go further up the list...So day 5 started out of the gate like a raging bull but fizzled really quickly. I had my test for the day done by 0915 and came back to my room anticipating breakfast. When you begin to anticipate hospital food you are in trouble. But alas I was asked to wait...the procedure (invasive) scheduled for tomorrow they thought maybe we could squeeze me in today. you guessed it...no food!!! so finally @1430 they realized it was not gonna happen today and allowed me to eat my lunch. I was thoroughly hungry by then and road kill would have looked good at that point. The road kill (in the form of roast beef with all flavor roasted completely out of it was brought up and i ate like a starving person savoring every bite. It was during that feeding frenzy that everyone and their brother decided to stop into room 268 for a chat. YOU HAVE GOT TO BE KIDDING ME!!!! I patiently took deep breaths and coughed at the appropriate times and just waited for the one person brave enough to even look at my remaining lunch. Nobody had to die today thankfully and eventually i was left in peace to devour the scraps ( the flavor could be described by removing the "s" in scrap) but I did receive my nourishment. so that is my day to this point. Oh yeah they took blood twice today also. ya gotta love the vampires. you are up to date. TTFN, MARK August 13 mayo day 4August 12 mayo day 3hello there, this is day 3 at the mayo clinic. minimal testing has ocurred with the normal blood testing being undertaken here. I really miss my family. It is difficult knowing the nearest hug from my daughters or wife is 3 hours away. I am trying to stay positive in here, but i have had some difficult news. I have been taken off the diabetic medication and have done well, my blood sugar has dropped to 121 which is very good. I have been praying alot and getting close to god and really have benefited from the prayer going up on my behalf and i have been praying for others. Tomorrow will start a very strenuous week of testing with bookings all day. I have to have a right and left catheter procedure on my heart where they go in through my neck and down to my heart to have a look at what is there. will keep it updated. August 11 mayo clinic updatehey all, here i sit all broken hearted...no really my heart is broke or really dysfunctional. so here i am in rochester,MN @ the mayo clinic. this is the best care i can possibly be getting and i am very appreciative that God would choose these hands to place me in for deliverance. I am asking for prayer for mary and the girls. Please sent a knee mail to God if you can spare a minute. |
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